Joined: 7/30/2015 Posts: 20
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Follow-up discussion to the panel webcast... post questions or comments here!
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Joined: 11/16/2010 Posts: 7
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Here are a few questions submitted by the audience yesterday...
Q: Why would patients jeopardize health insurance coverage for example by forfeiting privacy rights to genomic information that may later prove to be predictive or prognostic of a late onset disease state?
Q: I don't see much benefit in posting my genome sequence and medical data on FB. I would rather post my genome sequence on a system where (a) I will get some analysis of medical relevance for free (e.g. pathogenic variant detection, risk prediction), (b) contribute data to public, not-for-profit research, and maybe also (c) chat on a forum where experts comment on users' genetics results and the analysis methods used. What is really the advantage of a medium like Facebook? Is the input from other Facebook users really useful?
Q: Why is the medical community so behind in the use of this information?
Q: How about using the same social media for connectivity but deleting personal identifying information for purposes of aggregating data and examining trends?
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